Episode 98 | Wretches and Jabberers

Shannon and I interview Geradine Wurzberg director of the film Wretches and Jabberers.

The film is about the world travels of two middle-aged autistic men with severe communication difficulties. They travel to Sri Lanka, Japan and Finland to meet other adults with autism and to share more information about autism to different parts of the world.

From IMDB:

In 'Wretches & Jabberers and Stories from the Road', two men with autism embark on a global quest to change prevailing attitudes about disability and intelligence. With limited speech, Tracy Thresher, 42, and Larry Bissonnette, 52, both faced lives of mute isolation in mental institutions or adult disability centers. When they learned as adults to communicate by typing, their lives changed dramatically. Their world tour message is that the same possibility exists for others like themselves. At each stop, they dissect public attitudes about autism and issue a hopeful challenge to reconsider competency and the future. Along the way, they reunite with old friends from the USA, expand the isolated world of a talented young painter and make new allies in their cause.

Listen now!

Episode 97 | Dan Tedesco and the AutismTrack iPhone/iPad app

Today I had a great talk with Dan Tedesco of HandHold Adaptive and the new iOS (iPhone, iPad, iPod Touch) app called AutismTrack .

I talked with Dan a while back in episode 86 about their first product, iPrompts. One of the things I enjoy most about our conversations is the facsinating picture Dan paints for the future of these handheld devices and how they can help individuals with ASD.

Here is more about AutismTrack from their website:

AutismTrack™

A new app from the makers of iPrompts®! Featured by Apple as "New and Noteworthy"

AutismTrack™ is a portable, customizable data tracking tool that empowers caregivers of those with autism to easily track interventions, behaviors and symptoms. Checkboxes allow daily recording of any therapy, medicine or diet. Simple "sliders" allow rating of any behavior or symptom (e.g., eye contact, aggression and echolalic speech).

With multiple reporting features, this information can then be reviewed and shared, to help parents and other caregivers of children with Autism Spectrum Disorders (ASD) answer the ongoing and ever-puzzling question: "What seems to be working, and what's not?"

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Episode 96 | Dr. Scott Standifer Discusses Services for Adults With Autism

The other day I came across an article called “Aging with Autism.” It talks about adults with autism and working. As my son ages (he is ten now) I more often think about his future and how it will all play out.

So I contacted the Dr. Scott for an interview. Shannon and I discussed the Adult Autism and Employment Guide that he wrote (find it here) as well as his March 3-4, 2011 conference on autism and employment.

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Episode 95 | Stem Cell Transplants, Marty Kelly's Story

Shannon and I talk with Marty Kelly who has twice made the trip to Central America for stem cell transplants for her autistic son. After the first trip, Marty noticed significant gains in many areas and decided to make a recent, repeat trip.

We discuss the process of how stem cells work and the procedure used for her son.

Marty feels, and explains, that there is no downside to a stem cell transplant other than it not working. However, stem cell transplants are not allowed to be done in the USA and the Mayo Clinic writes on their website that: ” A stem cell transplant poses many risks of complications, some potentially fatal. Although some people experience few problems with a transplant, others must endure frequent tests and repeated hospitalizations.” For more information, see here and here.

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Episode 94 | Dr. Bob Sears

Shannon and I talk with Dr. Bob Sears author of the The Autism Book and The Vaccine Book: Making the Right Decision for Your Child.

We cover a range of topics that focus on Autism: Seven Critical Tips Every Parent Needs to Know

More about Dr. Sears from his website:

Robert W. Sears, MD, is a father of three, board-certified in Pediatrics, and a co-author in the Sears Parenting Library. “Dr. Bob”, as he likes to be called by his little patients, earned his medical degree at Georgetown University School of Medicine in 1995. He did his pediatric internship and residency at Children’s Hospital Los Angeles, finishing in 1998. Dr. Bob is the proud father of three active boys, Andrew, age 15, Alex, age 12, and Joshua age 6. He and his wife, Cheryl, reside in Dana Point, CA. In his spare time Dr. Bob enjoys surfing the California waves, mountain biking, playing bass guitar with his teenage son guitarist, and trying to keep up with his three children.

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Episode 93 | Photographer Megan Drane of Fire Fly Nights Photography

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Episode 93 | Photographer Megan Drane of Fire Fly Nights Photography

(Edit) - May 30th, 2010 Posted in Podcast

May, 30 2010

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Megan's Son

Shannon Johnson and I talk with Megan Drane of Fire Fly Nights Photography. Megan, a professional photographer, has a young son with autism. Realizing that there is a need out there for quality photos of families that have a child with autism, Megan moved into fill that gap.

We discuss her patient, flexible approach she uses to grab some fantastic photos. We also get into the range of emotions and feelings she comes across as she meets parents looking to get, perhaps, their first family photo shoot with a photographer who empathizes with their situation.

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Episode 92 | Dr. Paul Law of the IAN Project

I conduct a follow up discussion with Dr. Paul Law about the Interactive Autism Network (IAN). My first podcast with Dr. Law took place three years ago when the program was in its infancy.

Dr. Law also has a son with autism.

We discuss some of the latest studies that have come forth from IAN as well as where it might all lead to in the future.
More about IAN from their Website:

The Interactive Autism Network (IAN) is an innovative online project bringing together tens of thousands of people nationwide affected by autism spectrum disorders (ASDs) and hundreds of researchers in a search for answers.

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Episode 91 | Dr. Tracy Allow and Jungle Memory

Lori Boll and I talk with Dr. Tracy Alloway about working memory versus long term memory. We have an interesting discussion working memory (think short term) and how it relates to people with autism. We also discuss her working memory enhancing program called Jungle Learning.

Here is more about Tracy from her website:

Tracy Packiam Alloway, PhD, is the Director of the Center for Memory and Learning in the Lifespan at the University of Stirling, UK. She is the author of over 75 scientific articles and books on working memory and learning, and has developed the world’s first standardized working-memory tests for educators published by Pearson. Her research has received widespread international coverage, appearing in outlets such as the Guardian, Daily Mail, Scientific American, Forbes, US News, ABC News, and NBC. She is much in demand international speaker in North America, Europe, Asia and Australia. She is an advisor to the World Bank on the importance of working memory.

Listen

Episode 90 | Dr. Wilczynski of the National Autism Center

Shannon Johnson and I speak with Dr. Susan Wilczynski of the National Autism Center. We cover a range of topics including evidence based practices. We pay particular attention to an educators' field guide the National Autism Center put together for educators of children on the autism spectrum. You can see a copy of that guide here.

Here is some more about Dr. Wilczynski from her website:
Dr. Wilczynski is the Executive Director of the National Autism Center. In her role as Chair of the National Standards Project, she has worked in collaboration with experts from around the country in order to establish national standards for the treatment of individuals on the autism spectrum. Under Dr. Wilczynski’s leadership, the National Autism Center has recently published Evidence-based Practice and Autism in the Schools. This resource manual for educators is being distributed to school systems across the country. It is the first in a series of manuals to support families, educators, physicians, and service providers.

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Episode 89 | Autism Ambassadors

Shannon and I talk with Max and Zak of Autism Ambassadors These two fine young man (along with others) have developed-- and are developing -- programs in schools around the world designed to help students with autism. Their program encourages autism awareness and promotes relationships between typical students and those with autism.

Zak and Max hope to have well over 100 Autism Ambassador programs up and running before the end of 2010

Contact information:

• zak@autismambassadors.org
• max.sauberman@autismambassadors.org
• info@autismambassadors.org

For more information about songs for autism, check out singsos.org

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Episode 88 | Beth Maloney, Author of Saving Sammy

Shannon Johnson and I speak with Beth Maloney, author of Saving Sammy.

We discuss the relationship between strep infections and OCD.

In Beth's words:

"When my middle son was twelve, he was diagnosed with Obsessive Compulsive Disorder and then Tourette Syndrome. Confined to our home by the horror of his illness, a lifelong placement seemed his likely fate -- until I learned that a strep infection might be the cause (a disorder known as PANDAS). Most doctors said I was wrong; but I was right, and two doctors helped me cure him. He is now fully recovered."

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Episode 87 | Dr. Ross Greene, Author of the Explosive Child

Shannon Johnson and I talk with Dr. Ross Greene, author of The Explosive Child.

We have a wide ranging conversation about "explosive" children and how best to work with children that do not easily transition from one activity to another. This podcast does not specifically apply to children with autism.

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PermaLink

Episode 86 | iPrompts Visual Communication App For The iPhone/iPod Touch

I talk with Dan Tedesco of HandHold Adaptive about iPrompts, their new iPod Touch/iPhone application for people with special needs. In their own words "iPrompts: [is] the portable, customizable, visual prompting tool for those with special needs."

Basically the app lets me put together a visual schedule (think Teacch )for my son on my iPod Touch. I can import pictures and customize it as needed. Great product. We also discuss HandHold Adaptive's other products they have in the pipeline.

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Episode 85 | Parent and activist, Polly Tommey

Shannon Johnson (Foggyrock.com ) and I talk with Polly Tommey about her successful billboard campaign to meet with British Prime Minister, Gordan Brown. Polly is scheduled to meet with him soon.

Polly also runs the Autism Trust which is a foundation committed to putting together regional centers for people with autism.

Lastly, Polly is the editor-in-chief of the online magazine, Autism File

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Shannon Johnson (foggyrock.com) and I talk with Erik Linthorst, father to a child on the spectrum and creator of the film Autistic Like. We have a very interesting conversation about his son, Graham, who was initially diagnosed with autism at an early age. After much research and discussion with various therapists, Erik has come to the conclusion that his son’s behaviors and learning patterns are driven primarliy by a sensory processing disorder. He describes his son as autistic-like rather than autistic. For more information check out his website.

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Episode 83 | Dr. Robert Melillo Author of Disconnected Kids

Shannon Johnson and I talk with Chiropractic Neurologists Drs. Robert Melillo and Peter Scire. Dr. Melillo is the author of the book Disconnected Kids and founder of the Brain Balance Centers. We discuss his book and therapies that relate to his form of treatment. The discussion gets a bit heated at times.

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Episode 82 | Author and Parent, Chantal Sicile-Kira

Shannon Johnson (FoggyRock.com ) and I interview author and parent Chantal Sicile-Kira about her latest book, Autism Life Skills.

Chantal has written a number of books, been the on the cover of NEWSWEEK magazine , appeared on MTV , and hosts a radio show on AutismOne Radio

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Episode 81 | iPhone App, ProLoQuo2Go

Shannon (FoggyRock.com ) and I talk with Samuel Sennott about his iPhone App, ProLoQuo2Go . It is an AWESOME application for those looking for an AAC device. If you know PECS , you may find this app is for you. (Our PECS interview can be found here .)

Here is some more information from their website:


Proloquo2Go™ is a new product from AssistiveWare

that provides a full-featured communication solution for people who
have difficulty speaking. It brings natural sounding text-to-speech
voices, up-to-date symbols, powerful automatic conjugations, a default
vocabulary of over 7000 items, full expandability and extreme ease of
use to the iPhone and iPod touch.

Listen now!

Episode 80 | Nancy Wiseman, Author of First Signs

Shannon Johnson of Foggyrock.com and I talk with Nancy Wiseman author of Could It Be Autism?: A Parent’s Guide to the First Signs and Next Steps and, her latest book, The First Year: Autism Spectrum Disorders: An Essential Guide for the Newly Diagnosed Child

Here is more about Nancy from her website, Firstsigns.org:

Nancy D. Wiseman

As the founder and president of First Signs , Nancy Wiseman is dedicating her life to improving the lives of children and families affected by developmental disorders. Since 1999, Nancy has made a significant contribution to changing policy, improving awareness, and changing pediatric practice in how we screen, refer, and detect young children today. Before devoting herself to First Signs , Nancy worked in corporate communications for over 20 years building brand awareness, educating the public, and generating qualified leads for international companies in the financial, travel, office products, computer, and software industries. She now utilizes her skills in fundraising and development, staff and financial management, film and video production, as well as public relations and education, to direct First Signs, Inc . She has counseled parents worldwide and she has appeared in interviews with USA Today, Parents, and NBC’s Today Show. She is the author of Could It Be Autism? A Parent’s Guide to the First Signs and Next Steps and The First Year®: Autism Spectrum Disorders: An Essential Guide for the Newly Diagnosed Child . Nancy serves as president and treasurer and she is the mother of Sarah, who was diagnosed with autism at the age of two. Today—at age 13—Sarah stands as a powerful example of the impact that early identification and intensive intervention can have on young children with developmental delays and disorders. Nancy is the 2006 recipient of the American Academy of Pediatrics’ Dale Richmond/Justin Coleman Award for her outstanding achievement in the field of child development.

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Shannon Johnson of Foggyrock.com and I talk with Elaine Hall founder of The Miracle Project and inspiration behind the film Autism, The Musical.

Elaine is a single mother raising her fifteen year-old son Neal who is on the autism spectrum. We focus mostly on her work as an acting coach and the programs she as developed that enable people with special needs to take part in the world of drama.

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Episode 78 | iConverse an iPhone/iPod Touch Application

Shannon Johnson of FoggyRock.com and I talk with the co-creators of iConverse an iPhone/iPod touch application that functions much like a picture exchange communication system (PECS ).

While the application is new and currently contains only six icons, the potential for this efficient, useful, and compact assitive communication device is strong. The creators talk of users being able to generate their own icons at some point in the future as the software matures.

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Episode 77 | Keri Bowers of NormalFilms.com

Shannon Johnson of Foggyrock.com and I talk with Keri Bowers of normalfilms.com Keri, a single mother to two children, one of whom is on the autism spectrum, has forged an interesting path. She is the creator of at least three films about children with disabilities, an advocate, speaker, and most recently, a seminar leader about “Mapping Transitions To Your Child’s Future.”


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Episode 76 | Reciprocal Imitation Therapy (RIT)

I talk with Dr. Brooke Ingersoll about her relatively new treatment: Reciprocal Imitation Therapy (RIT). We discuss the methods behind the treatment as well as ways parents can implement it in their own home.

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Perma Link

Episode 75 | Dr. Marco Iacoboni, Author of Mirroring People

Shannon Johnson and I speak with Dr. Marco Iacoboni, author of the book Mirroring People. We discuss the contents of his book and how the mirror genes are related to people on the autism spectrum.

The book offers up some interesting ideas about how mirror genes do not function well with people on the autism spectrum.

Listen now!

Episode 74 | Author Sean Barron

Episode 74 | Author and former individual with autism, Sean Barron

By Michael Boll | August 3, 2008

Shannon Johnson and I talk with Sean Barron, co-author of There’s a Boy in Here and The Unwritten Rules of Social Relationships: Decoding Social Mysteries Through the Unique Perspectives of Autism.

Sean co-wrote the first book with his mother and it describes, in much detail, his life as a young man with autism. He later leaves autism behind and no longer considers himself to have autism.

Websites: Amazon.com link to his books.

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Show Notes

Shannon Johnson and I talk with John Robison, author of Look Me In The Eyes. In this fantastic interview, we discuss life as an adult on the spectrum, his book and some of the current treatments John is participating (Transcranial Magnetic Stimulation).

Listen Now!

Show Notes


http://www.autismpodcast.org/podcasts/50-75/episode72_john_robison%201.mp3

Moms on Autism, Episode 7 | Water, Water Everywhere

How playing with water led to playing in Play Therapy!

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Episode 72 | Rick Rollens: Father, Advocate, Fund Raiser

I speak with Rick Rollens. We discuss his views on the causes of autism, the work he has done for the autistic community and the need to deal with the increasing numbers of children classified as autistic. Rick’s story was a cover for NEWSWEEK and a segment on the CBS news show 60 Minutes.

Listen Now

Websites

• Rick’s Wikipedia Entry

Moms on Autism Episode 6 | Sleeping Issues

Podcast 6: Sleeping Issues

Difficulty sleeping? You’re not alone! Autistic children have VARIED sleep patterns.

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Episode 71 | Dennis Debauddt of Autism Risk and Safety Management

Episode 71: Shannon Johnson and I talk with Dennis Debbaudt, founder of Autism Risk and Safety Management. Dennis provides "Information and resources for law enforcement, first responders, parents, educators, and care providers." Dennis provides training to a wide group of people and is also an author.

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Show Notes

Moms on Autism, Episode 5 | Sign Language

Sign language can open doors of communication for children with autism.

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Episode 70 | Patty Dobbs Gross of North Star Dogs

Episode 70: Shannon Johnson and I talk with Patty Dobbs Gross of North Star Dogs, a provider of assistance dogs for children with autism. This wonderful program enables children of all ages to share their lives with a dog and constant companion.

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Show Notes

Moms on Autism, Episode 4 | Potty Training

Frustrating times when potty training an autistic child. It can be done.

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Moms on Autism, Episode 3 | Gluten-Free Diets

Gluten-Free diets: Thoughts and information.

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Moms on Autism, Episode 2 | Our Experiences with Applied Behavioral Analysis

Our experience with Applied Behavioral Analysis - learning about the program and our sons’ responses.

For more information, check out our website: MomsOnAutism.com

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Episode 69 | Author, speaker and adult with autism, Stephen Shore

Episode 69: Shannon Johnson and I talk with Stephen Shore a wonderful advocate for people with autism. Stephen, a published author, travels worldwide discussing life as an adult with autism. He joined us for a conversation about his life, his work and his advice.

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Show Notes

Moms On Autism |Episode 1

Welcome to our website. We’d like to introduce ourselves and our family. Please take a moment to listen to this inaugural momsonautism.com podcast.

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Episode 68| Donna Williams, author, artist and adult with autism, part two

Episode 68 (part two): Shannon Johnson finish our conversation with Donna Williams. See show notes for more details.

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Show Notes

Episode 67| Donna Williams, author, artist and adult with autism, part one

Episode 67: Shannon Johnson and I speak with author and artist Donna Williams. Donna is the author of nine books and creator of numerous blogs and websites (see links below). She discusses life as an adult on the autism spectrum, including her younger years.

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Show Notes

Episode 66| Lisa Rudy, Autism Guide at about.com

Episode 66: Shannon Johnson and I talk with Lisa Jo Rudy, guide and blog writer for about.com's autism section. We discuss her blog, topics she covers, feedback she hears and life as a parent to a boy with autism.

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Show Notes

Episode 65 | Parent and author, Cindy Lord

Episode 65: Cindy Lord is both an author of a wonderful book and a parent to a child with autism. Cindy's book, Rules, is an insightful story about a girl (Catherine) with an autistic brother (David). Told from Catherine's point of view, the book explores typical teenage life and all the complications that having a sibling with special needs adds.

Cindy shares some insights about the book and life as a parent to a child with special needs.

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Show Notes

Episode 64 | Dr, Mike of the Pedicast Podcast

Episode 64: I speak with Dr. Mike, the host and producer of the popular podcast, Pediacast. It was a nice chance to talk to a pediatrician long after my son was diagnosed with autism. I wanted to ask him about how pediatricians look at autism today and if they are more effective at spotting it early.

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Show Notes

Episode 63 | Fevers and Autism

Episode 63: I speak with Drs. Andrew Zimmerman and Laura Curran from the Kennedy Krieger Institute about autism and, believe it or not, fevers. We discuss a recent study published in the journal Pediatrics. You can read the full article here.

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Show Notes

Episode 62 | Foggy Rock

Episode 62: Shannon and Steve Johnson are the creators of Foggy Rock; a social networking site all about autism. If you are familiar with Facebook or MySpace then you can imagine what they have done here. Foggy Rock is a fantastic way for people to communicate and share information about autism in a user-friendly and dynamic way.

Listen Now

Show Notes

Episode 61 | Michael Goldberg of the Autsm Bulletin Blog

Episode 61: I talk with Michael Goldberg, author of the Autism Bulletin, a blog about many current and newsworthy events affecting the autism community. We cover a range of topics from insurance to his map that helps identify schools with individuals for autism. Michael also has a son with autism and I always enjoy having conversations with other fathers.

• Listen Now
• Show Notes

Episode 60 (part two): The SCERTS model with Dr. Barry Prizant

Episode 60 (part Two): I finish my discussion of the SCERTS model with Dr. Barry Prizant.

• Listen Now
• Show Notes

Episode 60: The SCERTS model with Dr. Barry Prizant

Episode 60 (part one): I talk with Dr. Barry Prizant a collaborator on the SCERTS model, an all encompassing program for working with individuals on the autism spectrum.


Listen Now
Show Notes

Episode 59 | Soma Mukhopadhyay and the Rapid Prompting Method (RPM)

Episode 59: I talk with Soma Mukhopadhyay about her son Tito, the Rapid Prompting Method (RPM) and her clinic, Helping Autism through Learning and Outreach (HALO).

Listen Now! Show Notes

Episode 58| The Interactive Autism Network (IAN)

Episode 58: I talk with Drs. Paul and Kiely Law about the Interactive Autism Network (IAN). The Laws, who have a child with autism, are building a database of information about individuals on the spectrum as well as their families. The information will be used to conduct further research. However, members of IAN may also view the current results of the survey right now. Listen Now Show Notes

Episode 57 | Dr. Laura Schriebman and Pivotal Response Training

Episode 57: I talk with Dr. Laura Schriebman a distinguished professor at the University of California, San Diego. She heads up the university's Autism Research Program and is one of the original developers of Pivotal Response Training, an ABA style behavioral treatment program.

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Show Notes

Episode 56| Portia Iverson, Founder of CAN and Author of Strange Son

Episode 56 : Dorene and I talk with Portia Iverson, Founder of the Cure Autism Now Foundation (CAN) and author of the new book, Strange Son. We discuss her book and the Rapid Prompting Method (RPM) for those with severe autism.

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Show Notes

Episode 55| Estee Klar-Wolfond of the Autism Acceptance Project

Episode 55: I talk with Estee Klar-Wolfond, director of the Autism Acceptance Project and author of the popular blog, the Joy of Autism.

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Show Notes

Episode 53 | Glenn Trengali of Autism Speaks

Episode 53: Dorene and I talk with Glenn Tringali, Executive Vice President of Autism Speaks. We discussed the creation of the organization, the mergers, their ad campaign and some of the exciting research Autism Speaks has planned for the future.

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Show Notes

Episode 52 | The Gaston Family Triplets

Episode 52: Lori and I talk with Randy and Lynn Gaston. They have three children on the spectrum and they are all the same age. In other words, they are TRIPLETS! We talk about their lives, children, a typical day, and the therapies they are putting to use.

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Show Notes

Autism RoundTable | Episode Six

Episode Six: The Autism Roundtable-Talking holidays after the holidays

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Show Notes