Episode 53: Dorene and I talk with Glenn Tringali, Executive Vice President of Autism Speaks. We discussed the creation of the organization, the mergers, their ad campaign and some of the exciting research Autism Speaks has planned for the future.Listen Now!
Show Notes
7 comments:
Hmmm. You might have considered getting some responses from those autistic individuals and parents who are very disturbed at the marketing of Autism Speaks.
See www.joyofautism.blogspot.com for my most recent post.
Any good they may be doing (I say this cautiously), is wiped out by their exclusion of autistics and their marketing. That is the ultimate discrimination and marginalization of autistic people.
BTW, I was asked by Mr. Tringali to be chair of NAAR in Toronto. I turned it down based on their inappropriate and bias representation of autism. I would be more than happy to work with an organization that will reflect on it's actions and change its direction in marketing of fear and by including many autistic people in its initiatives.
Ugh.
To find someone more offensive you'd have to talk to Lovaas, Rimland, or Alison Tepper Singer.
And that's pushing it.
Gross gross gross. Eugenicists make me vomit. I assume you DIDN'T ask him about that (really, they literally make me vomit, so I can't listen. adrenal failure.)
When are you going to ask us what we think about all this?
Dear Estee and Kassiane,
Thank you for posting your views. As you may know, my policy has always been to let the interviewee do the talking and present their viewpoint without my taking sides.
I try to interview a variety of people with a variety of viewpoints, including adults with autism and those that advocate for autism acceptance.
Heck, Kassiane, you were one of my favorite interviews. ;-)
Estee, if you would like to be on the show, I would be happy to chat with you. I did interview Kevin Leitch, but would be happy to talk about the Joy of Autism too.
Glad you guys are listening. Please continue to do so!
I haven't had time to listen to the interview yet, but I first heard of Mr Tringali when he and Andy Shih made the decision (along with Autism Society Canada, the Canadian Autism Intervention Research Network, the Canadian Institutes of Health Research, and a bunch of Canadian gov't leaders) to ban autistics from the most important Canadian conference ever held about the future of autistics in Canada.
Neither Mr Tringali nor Dr Shih answered my inquiries as to why they made this decision. That was in the NAAR era. NAAR (and surely now Autism Speaks) claimed to be more or less running the Canadian autism research agenda.
Canada would be a much better (at least, less bad) place to be an autistic if Mr Tringali and Dr Shih had not behaved so inappropriately (as they say) and unethically. Their actions in banning autistics certainly had a devastating (as they say) effect on the lives of autistic people in Canada.
Tringali??? ugh. You might give a little more thought to the people you invite on your show, Michael, especially since you don't challenge them. A person is not going to get much beyond the views of the interviewee all packaged up nice and pretty without critique by listening to one of your shows. Like I said, your interview with Raun Kaufmann was not much different from an infomercial. How about you start asking for some tough questions in writing to be submitted by your listeners to someone like Tringalli, so your interviewees can think about them and answer them. I'm sure Estee wouldn't mind being asked tough questions, so long as they were respectfully worded.
Tringali showed what he knew about autism when he said (while laughing) that autism was an "epidemic like issue".
here
I think the question you have to ask yourself, Michael, is retrospectively where would you be if Tringali had succeded 10 years ago? What effect would that have on your life, and is it a world you really want?
As the Neurotypical husband of an Autistic woman who has been variously abused, assaulted and raped during her life, I'm well versed in the pain that the condition can bring. But a world without my wife? More to the point a world without our three children?
If you have a toothache do you visit the dentist, or get someone to cut your head off? Either way the pain stops.
Trigali isn't about fixing your problem, my problem, or the problems that our respective son and wife have. He's about eliminating the problem, and to him - they are the problem. The head that needs cutting off.
And I'm very happy to appear on any of your shows with this gentleman and say just that....
Michael,
Yes, I'll take you up on that offer. My email is: estee@wolfond.com.
Many thanks.
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