Wednesday, April 27, 2011
The film is about the world travels of two middle-aged autistic men with severe communication difficulties. They travel to Sri Lanka, Japan and Finland to meet other adults with autism and to share more information about autism to different parts of the world.
In 'Wretches & Jabberers and Stories from the Road', two men with autism embark on a global quest to change prevailing attitudes about disability and intelligence. With limited speech, Tracy Thresher, 42, and Larry Bissonnette, 52, both faced lives of mute isolation in mental institutions or adult disability centers. When they learned as adults to communicate by typing, their lives changed dramatically. Their world tour message is that the same possibility exists for others like themselves. At each stop, they dissect public attitudes about autism and issue a hopeful challenge to reconsider competency and the future. Along the way, they reunite with old friends from the USA, expand the isolated world of a talented young painter and make new allies in their cause.
Monday, January 17, 2011
Today I had a great talk with Dan Tedesco of HandHold Adaptive and the new iOS (iPhone, iPad, iPod Touch) app called AutismTrack .
I talked with Dan a while back in episode 86 about their first product, iPrompts. One of the things I enjoy most about our conversations is the facsinating picture Dan paints for the future of these handheld devices and how they can help individuals with ASD.
Here is more about AutismTrack from their website:
AutismTrack™ A new app from the makers of iPrompts®! Featured by Apple as "New and Noteworthy"
AutismTrack™ is a portable, customizable data tracking tool that empowers caregivers of those with autism to easily track interventions, behaviors and symptoms. Checkboxes allow daily recording of any therapy, medicine or diet. Simple "sliders" allow rating of any behavior or symptom (e.g., eye contact, aggression and echolalic speech).
With multiple reporting features, this information can then be reviewed and shared, to help parents and other caregivers of children with Autism Spectrum Disorders (ASD) answer the ongoing and ever-puzzling question: "What seems to be working, and what's not?"
Tuesday, August 03, 2010
The other day I came across an article called “Aging with Autism.” It talks about adults with autism and working. As my son ages (he is ten now) I more often think about his future and how it will all play out.
So I contacted the Dr. Scott for an interview. Shannon and I discussed the Adult Autism and Employment Guide that he wrote (find it here) as well as his March 3-4, 2011 conference on autism and employment.
Friday, July 23, 2010
Shannon and I talk with Marty Kelly who has twice made the trip to Central America for stem cell transplants for her autistic son. After the first trip, Marty noticed significant gains in many areas and decided to make a recent, repeat trip.
We discuss the process of how stem cells work and the procedure used for her son.
Marty feels, and explains, that there is no downside to a stem cell transplant other than it not working. However, stem cell transplants are not allowed to be done in the USA and the Mayo Clinic writes on their website that: ” A stem cell transplant poses many risks of complications, some potentially fatal. Although some people experience few problems with a transplant, others must endure frequent tests and repeated hospitalizations.” For more information, see here and here.
Wednesday, July 21, 2010
Shannon and I talk with Dr. Bob Sears author of the The Autism Book and The Vaccine Book: Making the Right Decision for Your Child.
We cover a range of topics that focus on Autism: Seven Critical Tips Every Parent Needs to Know
More about Dr. Sears from his website:
Robert W. Sears, MD, is a father of three, board-certified in Pediatrics, and a co-author in the Sears Parenting Library. “Dr. Bob”, as he likes to be called by his little patients, earned his medical degree at Georgetown University School of Medicine in 1995. He did his pediatric internship and residency at Children’s Hospital Los Angeles, finishing in 1998. Dr. Bob is the proud father of three active boys, Andrew, age 15, Alex, age 12, and Joshua age 6. He and his wife, Cheryl, reside in Dana Point, CA. In his spare time Dr. Bob enjoys surfing the California waves, mountain biking, playing bass guitar with his teenage son guitarist, and trying to keep up with his three children.
Sunday, May 30, 2010
your audio connection to autism
Shannon Johnson and I talk with Megan Drane of Fire Fly Nights Photography. Megan, a professional photographer, has a young son with autism. Realizing that there is a need out there for quality photos of families that have a child with autism, Megan moved into fill that gap.
We discuss her patient, flexible approach she uses to grab some fantastic photos. We also get into the range of emotions and feelings she comes across as she meets parents looking to get, perhaps, their first family photo shoot with a photographer who empathizes with their situation.
Sunday, April 25, 2010
Dr. Law also has a son with autism.
We discuss some of the latest studies that have come forth from IAN as well as where it might all lead to in the future.
More about IAN from their Website:
The Interactive Autism Network (IAN) is an innovative online project bringing together tens of thousands of people nationwide affected by autism spectrum disorders (ASDs) and hundreds of researchers in a search for answers.
Sunday, April 04, 2010
Here is more about Tracy from her website:
Tracy Packiam Alloway, PhD, is the Director of the Center for Memory and Learning in the Lifespan at the University of Stirling, UK. She is the author of over 75 scientific articles and books on working memory and learning, and has developed the world’s first standardized working-memory tests for educators published by Pearson. Her research has received widespread international coverage, appearing in outlets such as the Guardian, Daily Mail, Scientific American, Forbes, US News, ABC News, and NBC. She is much in demand international speaker in North America, Europe, Asia and Australia. She is an advisor to the World Bank on the importance of working memory.
Monday, February 08, 2010
Here is some more about Dr. Wilczynski from her website:
Dr. Wilczynski is the Executive Director of the National Autism Center. In her role as Chair of the National Standards Project, she has worked in collaboration with experts from around the country in order to establish national standards for the treatment of individuals on the autism spectrum. Under Dr. Wilczynski’s leadership, the National Autism Center has recently published Evidence-based Practice and Autism in the Schools. This resource manual for educators is being distributed to school systems across the country. It is the first in a series of manuals to support families, educators, physicians, and service providers.
Sunday, January 10, 2010
Shannon and I talk with Max and Zak of Autism Ambassadors These two fine young man (along with others) have developed-- and are developing -- programs in schools around the world designed to help students with autism. Their program encourages autism awareness and promotes relationships between typical students and those with autism.
Zak and Max hope to have well over 100 Autism Ambassador programs up and running before the end of 2010
Tuesday, December 15, 2009
Shannon Johnson and I speak with Beth Maloney, author of Saving Sammy.
Thursday, July 30, 2009
Friday, June 26, 2009
I talk with Dan Tedesco of HandHold Adaptive about iPrompts, their new iPod Touch/iPhone application for people with special needs. In their own words "iPrompts: [is] the portable, customizable, visual prompting tool for those with special needs."
Basically the app lets me put together a visual schedule (think Teacch )for my son on my iPod Touch. I can import pictures and customize it as needed. Great product. We also discuss HandHold Adaptive's other products they have in the pipeline.
Friday, June 12, 2009
Shannon Johnson (Foggyrock.com ) and I talk with Polly Tommey about her successful billboard campaign to meet with British Prime Minister, Gordan Brown. Polly is scheduled to meet with him soon.
Polly also runs the Autism Trust which is a foundation committed to putting together regional centers for people with autism.
Lastly, Polly is the editor-in-chief of the online magazine, Autism File
Tuesday, May 26, 2009
Shannon Johnson (foggyrock.com) and I talk with Erik Linthorst, father to a child on the spectrum and creator of the film Autistic Like. We have a very interesting conversation about his son, Graham, who was initially diagnosed with autism at an early age. After much research and discussion with various therapists, Erik has come to the conclusion that his son’s behaviors and learning patterns are driven primarliy by a sensory processing disorder. He describes his son as autistic-like rather than autistic. For more information check out his website.
Wednesday, May 20, 2009
Shannon Johnson and I talk with Chiropractic Neurologists Drs. Robert Melillo and Peter Scire. Dr. Melillo is the author of the book Disconnected Kids and founder of the Brain Balance Centers. We discuss his book and therapies that relate to his form of treatment. The discussion gets a bit heated at times.
Sunday, May 10, 2009
Shannon Johnson (FoggyRock.com ) and I interview author and parent Chantal Sicile-Kira about her latest book, Autism Life Skills. Listen Now
Sunday, May 03, 2009
Shannon (FoggyRock.com ) and I talk with Samuel Sennott about his iPhone App, ProLoQuo2Go . It is an AWESOME application for those looking for an AAC device. If you know PECS , you may find this app is for you. (Our PECS interview can be found here .)
Here is some more information from their website:
Proloquo2Go™ is a new product from AssistiveWare
that provides a full-featured communication solution for people who
have difficulty speaking. It brings natural sounding text-to-speech
voices, up-to-date symbols, powerful automatic conjugations, a default
vocabulary of over 7000 items, full expandability and extreme ease of
use to the iPhone and iPod touch.
Saturday, April 18, 2009
Shannon Johnson of Foggyrock.com and I talk with Nancy Wiseman author of Could It Be Autism?: A Parent’s Guide to the First Signs and Next Steps and, her latest book, The First Year: Autism Spectrum Disorders: An Essential Guide for the Newly Diagnosed Child
Here is more about Nancy from her website, Firstsigns.org:
Nancy D. Wiseman
As the founder and president of First Signs , Nancy Wiseman is dedicating her life to improving the lives of children and families affected by developmental disorders. Since 1999, Nancy has made a significant contribution to changing policy, improving awareness, and changing pediatric practice in how we screen, refer, and detect young children today. Before devoting herself to First Signs , Nancy worked in corporate communications for over 20 years building brand awareness, educating the public, and generating qualified leads for international companies in the financial, travel, office products, computer, and software industries. She now utilizes her skills in fundraising and development, staff and financial management, film and video production, as well as public relations and education, to direct First Signs, Inc . She has counseled parents worldwide and she has appeared in interviews with USA Today, Parents, and NBC’s Today Show. She is the author of Could It Be Autism? A Parent’s Guide to the First Signs and Next Steps and The First Year®: Autism Spectrum Disorders: An Essential Guide for the Newly Diagnosed Child . Nancy serves as president and treasurer and she is the mother of Sarah, who was diagnosed with autism at the age of two. Today—at age 13—Sarah stands as a powerful example of the impact that early identification and intensive intervention can have on young children with developmental delays and disorders. Nancy is the 2006 recipient of the American Academy of Pediatrics’ Dale Richmond/Justin Coleman Award for her outstanding achievement in the field of child development.Listen Now
Thursday, March 26, 2009
Shannon Johnson of Foggyrock.com and I talk with Elaine Hall founder of The Miracle Project and inspiration behind the film Autism, The Musical.
Elaine is a single mother raising her fifteen year-old son Neal who is on the autism spectrum. We focus mostly on her work as an acting coach and the programs she as developed that enable people with special needs to take part in the world of drama.
Wednesday, March 18, 2009
While the application is new and currently contains only six icons, the potential for this efficient, useful, and compact assitive communication device is strong. The creators talk of users being able to generate their own icons at some point in the future as the software matures.
Saturday, March 14, 2009
Sunday, February 22, 2009
I talk with Dr. Brooke Ingersoll about her relatively new treatment: Reciprocal Imitation Therapy (RIT). We discuss the methods behind the treatment as well as ways parents can implement it in their own home.
Monday, February 02, 2009
Shannon Johnson and I speak with Dr. Marco Iacoboni, author of the book Mirroring People. We discuss the contents of his book and how the mirror genes are related to people on the autism spectrum.The book offers up some interesting ideas about how mirror genes do not function well with people on the autism spectrum.
Sunday, August 03, 2008
By Michael Boll | August 3, 2008
Shannon Johnson and I talk with Sean Barron, co-author of There’s a Boy in Here and The Unwritten Rules of Social Relationships: Decoding Social Mysteries Through the Unique Perspectives of Autism.
Sean co-wrote the first book with his mother and it describes, in much detail, his life as a young man with autism. He later leaves autism behind and no longer considers himself to have autism.
Websites: Amazon.com link to his books.
Monday, July 21, 2008
Shannon Johnson and I talk with John Robison, author of Look Me In The Eyes. In this fantastic interview, we discuss life as an adult on the spectrum, his book and some of the current treatments John is participating (Transcranial Magnetic Stimulation).Listen Now!
Saturday, July 19, 2008
Thursday, July 10, 2008
I speak with Rick Rollens. We discuss his views on the causes of autism, the work he has done for the autistic community and the need to deal with the increasing numbers of children classified as autistic. Rick’s story was a cover for NEWSWEEK and a segment on the CBS news show 60 Minutes.
Thursday, July 03, 2008
Saturday, June 28, 2008
Episode 71: Shannon Johnson and I talk with Dennis Debbaudt, founder of Autism Risk and Safety Management. Dennis provides "Information and resources for law enforcement, first responders, parents, educators, and care providers." Dennis provides training to a wide group of people and is also an author.
Monday, June 16, 2008
Sunday, June 08, 2008
Episode 70: Shannon Johnson and I talk with Patty Dobbs Gross of North Star Dogs, a provider of assistance dogs for children with autism. This wonderful program enables children of all ages to share their lives with a dog and constant companion.Listen Now
Thursday, May 15, 2008
Monday, May 12, 2008
Thursday, May 08, 2008
For more information, check out our website: MomsOnAutism.com
Wednesday, May 07, 2008
Episode 69: Shannon Johnson and I talk with Stephen Shore a wonderful advocate for people with autism. Stephen, a published author, travels worldwide discussing life as an adult with autism. He joined us for a conversation about his life, his work and his advice.Listen Now
Sunday, May 04, 2008
Monday, April 28, 2008
Episode 68 (part two): Shannon Johnson finish our conversation with Donna Williams. See show notes for more details.
Monday, April 21, 2008
Episode 67: Shannon Johnson and I speak with author and artist Donna Williams. Donna is the author of nine books and creator of numerous blogs and websites (see links below). She discusses life as an adult on the autism spectrum, including her younger years.Listen Now
Saturday, April 12, 2008
Episode 66: Shannon Johnson and I talk with Lisa Jo Rudy, guide and blog writer for about.com's autism section. We discuss her blog, topics she covers, feedback she hears and life as a parent to a boy with autism.
Saturday, March 01, 2008
Cindy shares some insights about the book and life as a parent to a child with special needs.Listen Now
Tuesday, January 29, 2008
Wednesday, January 02, 2008
Thursday, December 20, 2007
Episode 62: Shannon and Steve Johnson are the creators of Foggy Rock; a social networking site all about autism. If you are familiar with Facebook or MySpace then you can imagine what they have done here. Foggy Rock is a fantastic way for people to communicate and share information about autism in a user-friendly and dynamic way.
Wednesday, November 21, 2007
Episode 61: I talk with Michael Goldberg, author of the Autism Bulletin, a blog about many current and newsworthy events affecting the autism community. We cover a range of topics from insurance to his map that helps identify schools with individuals for autism. Michael also has a son with autism and I always enjoy having conversations with other fathers.
Monday, November 12, 2007
Episode 60 (part Two): I finish my discussion of the SCERTS model with Dr. Barry Prizant.
Thursday, November 01, 2007
Episode 60 (part one): I talk with Dr. Barry Prizant a collaborator on the SCERTS model, an all encompassing program for working with individuals on the autism spectrum.
Thursday, April 19, 2007
Listen Now! Show Notes
Thursday, April 12, 2007
Episode 58: I talk with Drs. Paul and Kiely Law about the Interactive Autism Network (IAN). The Laws, who have a child with autism, are building a database of information about individuals on the spectrum as well as their families. The information will be used to conduct further research. However, members of IAN may also view the current results of the survey right now. Listen Now Show Notes
Friday, April 06, 2007
Episode 57: I talk with Dr. Laura Schriebman a distinguished professor at the University of California, San Diego. She heads up the university's Autism Research Program and is one of the original developers of Pivotal Response Training, an ABA style behavioral treatment program.
Thursday, March 08, 2007
Episode 56 : Dorene and I talk with Portia Iverson, Founder of the Cure Autism Now Foundation (CAN) and author of the new book, Strange Son. We discuss her book and the Rapid Prompting Method (RPM) for those with severe autism.
Thursday, February 22, 2007
Episode 55: I talk with Estee Klar-Wolfond, director of the Autism Acceptance Project and author of the popular blog, the Joy of Autism.Listen Now
Thursday, February 01, 2007
Episode 53: Dorene and I talk with Glenn Tringali, Executive Vice President of Autism Speaks. We discussed the creation of the organization, the mergers, their ad campaign and some of the exciting research Autism Speaks has planned for the future.
Thursday, January 25, 2007